left work early today to see the neurologist it took me 2 months to get in to see. i'm honestly more upset over that part of it than anything.
diagnosis confirmed, i have a chiari malformation.for those who don't know:
Arnold–Chiari malformation, or often simply Chiari malformation, is a malformation of the brain. It consists of a downward displacement of the cerebellar tonsils through the foramen magnum (the opening at the base of the skull), sometimes causing non-communicating [1] hydrocephalus as a result of obstruction of cerebrospinal fluid (CSF) outflow
thanks Wiki!
the doc was still concerned about MS, saying all signs point to Multiple Sclerosis. any scans keep coming back negative though, so if he wants to keep looking, by all means. i'm about accuracy. cause if you get it right, then you treat me right.
they set me up with a neurosurgeon, to have a sit down. don't know how that will go, just have to see. from what i understand, the measurement has been what they judge by, but now its more about severity of symptoms. the length of the displacement does not directly correlate to how prevalent your symptoms are.
i didn't particularly enjoy today's visit. i find most doctors difficult to speak with and have had enough blow me off in the past decade to really be apprehensive. i mean, you're there and obviously freaked and desperate and it seems like they don't get it.
i mean, i'm not itching for brain surgery to cause i'm into staples and scars. i'm not looking for the sympathy vote or the drama. i just really really really wanna feel better. i won't whine anymore about all the things i want, at least not in this post. just an update.
feel free to look things up, but i encourage you to not let it bother you, some of it could give you the heebs.
No comments:
Post a Comment